I've been obsessing about my rapidly thinning hair all week. Eve's haircut was a relief (and looked really good), but the rate of thinning has been increasing daily. I lost so much hair in the shower yesterday that it was visibly different afterward.
This afternoon I was obsessing some more and trying to convince myself to just buzz it off and be done with it. I tried my logic on Noah and Margaret (it's a difference of a few days either way, this gives me some control over it, it's visibly thin anyway), but they thought it still looked like hair and I should stick it out a bit longer. I was feeling out of sorts, tired, and a little "fluey" anyway, so I settled on the fence (again).
Then Joseph came over between a Rebecca drop-off and an Alex pick-up. I told him what I really wanted was to take control of the situation and make it fun to shave my head, but I was too tired and icky feeling to pull it off. Always up for an adventure or novel experience, Joe leaped into action. He bought me three energy drinks at 7-11 to taste test to get me past my low-energy buzz-kill (Monster was the winner). Then he made sure the clippers were adjusted properly and told me I had to get moving so he could be home in time for dinner. Margaret was our videographer, Noah provided help, plus love and affirmation, and the rest is history...
Sunday, September 28, 2008
Thursday, September 25, 2008
My Haircut at Apple
When my hair started falling out this week, my coworker, Eve, was kind enough to cut it short. Here is a video of my hair being cut in the ladies bathroom at Apple!
Here are the pictures Eve took when she was finished.

Here are the pictures Eve took when she was finished.

Tuesday, September 23, 2008
Third infusion
I had my third infusion this morning. It was free of incident, as usual. The doctors were interested in my mild symptoms of peripheral numbness, but they thought it was very minor and did not change my Abraxane dosage. I'm pretty tired now (9:20pm), but I didn't sleep well last night and I find the infustion days stressful, even though they are pretty dull and slow. I still can't tell if the drugs make me tired, or all the surrounding angst makes me tired.
I am definitely losing my hair now. They told me to expect it around week three, so maybe this is a bit early. I noticed yesterday that a lot of hair came out in the shower. Single strands, but quite a few of them. Now when I run my hand through my hair, if I apply any friction at all I pull out multiple strands of hair. I can feel them pulling out of my scalp, but the roots have died so they come out very gently. I didn't think this would be a big deal for me. It is, after all, a tiny blip in the big deal scheme of things compared with having cancer. But it is not making me happy.
Oh well. I have quite a few cool new hats so I'm ready for the bald head (I guess). I bought a number for myself to make sure I was prepared. Friends have also given me several really cool hats. I'll post pictures when I start wearing them.
I am definitely losing my hair now. They told me to expect it around week three, so maybe this is a bit early. I noticed yesterday that a lot of hair came out in the shower. Single strands, but quite a few of them. Now when I run my hand through my hair, if I apply any friction at all I pull out multiple strands of hair. I can feel them pulling out of my scalp, but the roots have died so they come out very gently. I didn't think this would be a big deal for me. It is, after all, a tiny blip in the big deal scheme of things compared with having cancer. But it is not making me happy.
Oh well. I have quite a few cool new hats so I'm ready for the bald head (I guess). I bought a number for myself to make sure I was prepared. Friends have also given me several really cool hats. I'll post pictures when I start wearing them.
Our walk after chemotherapy
Sunday, September 21, 2008
Photos below...
I added the photos in the posts below just to give a recent view of Alex and Rebecca. Joseph took these snapshots a few weeks ago on the first day of school. The last one is from two years ago when, on a backpacking trip in the Grand Canyon, Joseph and Alex ran into John McCain camping with his son...
Saturday, September 20, 2008
First update via Blog
This blog is experimental. I have updated a number of people about my diagnosis (metastasized melanoma) and my treatment (chemo) via email, but I inevitably leave someone important off the list, or feel that I am spamming people who don't feel comfortable telling me they'll just ask if they want to know something about me.
So, I'm going to see if blogging my updates works better. I'll send the URL out to folks, update the site periodically, and see if this turns out to be a good way keep people who want to know the latest up to date.
The latest, latest as of today (9/20) is that my second treatment this past Tuesday was uneventful. I still feel very well. I didn't get too tired. My hair has not begun to fall out yet. But I think I have beginning symptoms of numbness in my fingers and toes (mild enough that I'm not 100% sure it isn't my mind playing tricks on me). This is a symptom of neuropathy, which is a pretty common side effect of Abraxane (my chemo drug). I'll tell the doctors about it this week and we'll see if I skip a week of Abraxane, or if they reduce the dose. I think it will be one or the other. TTFN.
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